The children’s epilepsy nurses can provide ongoing care to children and young people with epilepsy by offering specialist information, support and education to them, their families and carers. We work with patients from diagnosis until their care is transferred to adult services.
We can see children/young people, their families and carers in a range of settings:
- visit to home
- visit to the ward (if inpatient)
- outpatient clinic
- visit to school
- video call
We provide:
- information about epilepsy diagnosis and classification of seizure types
- epilepsy care plan
- advice about medication and possible side effects
- advice on dealing with seizures
- emergency medication training for parents and carers
- regular training sessions for education and nursery staff on administration of emergency medication
- advice about safety and lifestyle implications
- telephone support and advice
- support when modifying treatment or weaning off medication
- support with transition to adult services
