Children's Specialist Services
Children's Surgical Clinical Nurse Specialist (CNS) Service
Provides support for families who have children and young people with complex bowel problems e.g. stomas. Provides support and help as needed to families who perform very specific bowel related care for their babies and children. This includes bowel washouts, anal dilations and also perform distal loop washouts specifically on children with certain bowel conditions. All care is discussed with Leeds Neonatal/bowel nurses and Paediatric Surgeons.
The surgical CNS is the lead professional for children who receive home Total Parental Nutrition. Close liaison with Regional Children's Nutritional Team at Leeds General Infirmary including regular joint meetings with the team.
For these complex conditions provides tailored training and information to patients, families and colleagues. Training and liaison with nurseries, schools, colleges and respite facilities, providing care planning and risk assessment as needed.
Promotes joint working with community services to facilitate home care of these children with complex problems.
More recently involved with joint Spina Bifida clinics within Child Development Centre, to promote independence of children learning to catheterise themselves.
Children's Palliative Care Service
The community palliative care team offers specialist support and advice to children and their families in all aspects of palliative care throughout their life, illness, death and bereavement. We support families throughout their journey. Care and support is provided within their home, hospital and hospice setting.
We also offer support to professionals from various agencies which come in contact with children who have a life limiting or threatening condition. This can include comprehensive assessment and systematic planning of care; case management; specialist advice regarding symptom management; supporting children and their families through diagnosis and helping them to understand the effects of their condition, support around end of life planning. We work with families who are discharged from the neonatal unit, through to supporting teenagers and young adults through the transition gateway to adult services. We maintain a family centred, holistic approach to all aspect of our care provision.
The Macmillan Family support workers provide support to parents on both an individual and group basis.
This service operates Monday- Friday 8am to 6pm. Support is offered outside these hours when required on a case by case basis.
Danielle Lewis - Children's Palliative CNS
Helen Storton - Children's Palliative CNS
Nichola Horsman - MacMillan Family Support Worker
Ifsa Iqbal - MacMillan Family Support Worker
Lisa Smith - Play Specialist
The team work across five days, however hours are flexible according to service need. The purpose of the Transition Health Care Coordinators is to facilitate the smooth transition of young people with long term physical and medical conditions / health needs from child centred to adult orientated health care provision. Many of the caseloads have multiple complex conditions where there is a need for 3 or 4 specialist adult consultants and a wider range of health partners to be involved. The team facilitate Improved communication between individual practitioners, support and signpost young people and their families to appropriate services making care more sustainable.
We aim to provide an exemplary child-friendly out-patient service dedicated to children and their families with a variety of conditions and illnesses. Treatment is streamlined where possible to provide children with specialised and dedicated care relating to their condition. We pride ourselves on having a professional, but friendly approach and work hard to ensure that each child has a positive experience of us. As well as paediatricians, we have trained children's nurses and play leaders and work as a team to provide the very best possible care. We work in partnership with the child and family and encourage feedback to enable us to further improve our service.
One comment from a parent stated, 'What a fabulous visit to hospital with my 7 year old son. Very warm welcome with a smile, friendly staff made my son feel at ease.'
Children's Epilepsy Nurse Service
St Luke's Hospital - 01274 365887
Provides support for families who have children or young people with epilepsy, who are under the care of a Bradford Paediatrician
The service provides:
- Tailored information and advice about epilepsy to patients and family.
- Liaison with nurseries/ schools/ colleges/ respite care as needed.
- Care planning, facilitating appropriate participation, risk assessment, rescue medication training and telephone advice
- Supports transition to Adult Epilepsy Service
The Practice and Professional Development Team
Emma Wilkinson-Clinical Support Practitioner in the Children's Community Team
Vacant post - Practice and Professional Development Nurse for the Paediatric Wards
Farha Khan- Administrator
The focus for the practice and professional development team is ensuring high quality care is delivered by nursing staff throughout children's services. We are dedicated to ensuring patients receive safe and effective care whilst continually striving to enhance the experience that children and families have coming in to contact with our services.
This is done through:
- Developing competency based training packages to ensure nursing and support staff, understand the skills they require to care for all children.
- Supporting staff in developing complex skills through teaching and competency assessment, working alongside staff in the clinical or community setting, ensuring the required level of skill is achieved.
- Identifying and implementing training for interventions that are in line with current evidence and research, enabling staff to apply the principles in practice.
- Liaising with educational department to ensure standards of the Trust are met in relation to teaching, training and competency assessment.
- Identifying and implementing training in response to audits, incidents and national policy, therefore reducing risk and increasing safety.
- Collaborating with senior nursing teams, identifying training needs in relation to the service required.
- Identifying individuals learning needs, ensuring these are met in a constructive and supportive way.
- Promoting a friendly learning environment, encouraging sharing of learning experiences and openness to new ideas and challenges.
- Planning and implementing, continuing programmes of training to ensure skills are updated, reviewing and updating these regularly.
- Facilitating and co-ordinating mandatory and bespoke training programmes.
- Ensuring all training is role specific and achievable in the diverse areas of the service.
- Accurately recording training on Trust approved and local databases.
- Acting as role models to staff to promote professionalism and excellence in standards of care, working within policies and guidelines of the Trust.
- Contributing to development of standards and performance through collaboration with management teams and development of policies and guidelines.
- Championing patient's rights, respecting their dignity, choices, wishes and well being.
- Acting as a mentor, preceptor or clinical supervisor. For example for those completing educational courses or returning to work after a period of absence.
- Providing equipment training for staff as key trainers.
- Providing training in respite and educational settings for children with complex needs.
- Providing training for parents/carers in response to the requirements of the child.